My Sister Has Diabetes and How That Makes Me Feel by Grace Rooney, Illustrated by Michele Pensa 2010 CreateSpace Independent Publishing Platform, 2015. ISBN 9781515344520. $7.99.

In the 26 years that our family has been involved in the type 1 diabetes community, I have never encountered a resource for siblings with the depth of insight I found in My Sister Has Diabetes and How That Makes Me Feel. With just 32 pages — 16 illustrations and 16 pages of powerful words — Grace Rooney shares the incredible range of feelings all siblings experience in a way that is both empowering and liberating. Parents should add this book to their diabetes library. Health care professionals should not only read this book, they should give a copy to every family they serve to help validate the complex emotions siblings experience and help them realize that, like their brothers and sisters with type 1 diabetes, they are not alone. Highly recommended.

— Jeff Hitchcock

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My Life as a Pancreas: Reflections on Raising a Child with Diabetes by Priscilla Call Essert 2006 Published by ISBN 978-1-84728-156-2. US$15.00.

For me, the most amusing part of My Life as a Pancreas was the story of Priscilla’s son running around at a parent/child gathering, playing with the other kids. He stopped for some food to prevent a low but left half his cookie in her hand. She yelled out to her son, “Byron, get back here now and finish this cookie. You can’t play unless you finish this cookie. You must have this sugar.” As other parents sat jaws agape, a little girl came up and asked, “Would you be my mommy? My mommy won’t let me have sugar.”

That moment, and dozens more, are what we as parents of kids with diabetes live, everyday, as we pretend to be our children’s pancreas. My Life as a Pancreas isn’t a medical book, it’s therapy for parents. And you’ll love every page, even if some of the stories hit rather close to home. Highly Recommended.

— Jeff Hitchcock

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My Child Has Diabetes: A Parent’s Guide to a Normal Life After Diagnosis by Karen Hargrave-Nykaza 2006 Published by iUniverse. ISBN 0-595-38841-8. US$12.95.

Your child has just been diagnosed with type 1 diabetes. You’ve learned how to check blood sugar levels and inject insulin. Then you’re sent home. Now what?

Parent Karen Hargrave-Nykaza will help you figure out what living with diabetes really means — dealing with school, finding and trusting a babysitter, sleepovers, birthday parties, siblings, and taking care of yourself — and that’s just the beginning. If you’re new to diabetes and are looking for help from an experienced mom, My Child Has Diabetes is a good place to start.

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MEDLINE: A Guide to Effective Searching by Brian S. Katcher 1999 Published by Ashbury Press. ISBN 0-9673445-0-6. $29.00.

From the Publisher:

This concise and clearly written book will make your MEDLINE searches more productive. Any health professional will benefit from reading this book, which explains the basics of formulating searches, shows how to put the main indexing elements in MEDLINE to best use, illustrates the importance of Medical Subject Headings (MeSH), provides guidance on framing questions, and backs everything up with practical examples. Includes a glossary of all MeSH used in the book and two appendices.

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Managing Your Child’s Diabetes by Robert Wood Johnson, IV, Sale Johnson, Casey Johnson and Susan Kleinman 1992 Published by MasterMedia Limited. ISBN 0-942361-48-2. US$10.95.

The Johnson family tells the story of Casey’s of diabetes, beginning with her diagnosis at age eight. The book is very easy to read and contains the wisdom of the Johnson’s personal experiences and those of many other parents and health care professionals. Managing Your Child’s Diabetes contains excellent, real-world advice, including school issues and how to minimize the impact of diabetes on your family. Highly recommended for parents of newly diagnosed kids, since it will help put things into perspective.

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Management of Diabetes Mellitus: Perspectives of Care Across the Life Span by edited by Debra Haire-Joshu, MSEd, MSN, PhD, RN 1992 Published by Mosby Year Book. ISBN 0-8016-2429-0. About US$40.00.

This book is an exceptionally rich text aimed at medical professionals but accessible to those with a modest background in science and a willingness to use a dictionary. Management of Diabetes Mellitus addresses all aspects of the disease, and does have several chapters specifically aimed at children with diabetes. Chapters 11 through 13 cover diabetes from childhood through adolesence and encompass 117 pages. For anyone who can read Scientific American, this book is a worthy addition to the home library.

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Living With Juvenile Diabetes: A Practical Guide for Parents and Caregivers by Victoria Peurrung 2001 Published by Hatherleigh Press. ISBN 1-57826-057-4. US$14.95.

As the mother of two young children with Type 1 diabetes, Victoria Peurrung has written a book about caring for children with diabetes based on her own “practical” experience. She includes lots of healthy recipes; kitchen tips; advice on how to deal with emergencies, such as lows and sick days; a brief summary of current research; and a good list of resources for more information and help. Providing information on the basics of diabetes, Mrs. Peurrung has written a fairly all-encompassing book, although she has not included information on insulin types her children do not use, including Lente, Ultralente and the soon-to-be-available Lantus. In general, the book is a good starting point for parents of newly diagnosed children.

— Brenda Hitchcock

You can download and read the first chapter from the book. Adobe Acrobat reader required.

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Kids First Diabetes Second: Tips for Parents a Child with Type 1 by Leighann Calentine 2012 Published by Spry Publishing. ISBN 1938170008. 272 pages, paperback. US$15.95.

After you’ve met with MDs, RNs, RDs, and CDEs to learn the ABC’s of diabetes care (insulin injections, glucose monitoring, treating lows), the next people you need to meet have different credentials — MOM and DAD. Here, Leighann Calentine, MOM, offers her wisdom and guidance on parenting a child with type 1 diabetes. The chapter headings tell it best, perhaps none more so than chapter seven: Less Stress, More Happiness. That’s the essence of Calentine’s book — offering thoughts and strategies to achieve the true goal of all parents: kids who are happy and healthy, even with type 1 diabetes. There are many books about the medical aspects of living with type 1. There are few about the “living a life” aspects of type 1. This is one of the best. Highly Recommended.

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The Joslin Guide to Diabetes by Richard S. Beaser, M.D. with Joan V.C. Hill, R.D., C.D.E 1995 Published by Simon & Schuster. ISBN 0-684-80208-2. About US$14.00.

From the world-famous Joslin Diabetes Center, The Joslin Guide to Diabetes should be part of every diabetic’s library. With the theme of team care and patient involvement as a backdrop, this book gives thorough coverage of diabetes, its treatment and complications, in terms that almost any adult or teenager can grasp. Chapter 14 is specifically devoted to Diabetes in Children.

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The Insulin Kid by Rose Duncan O'Donnell 1997 Published by WritePro Publishing, 153 Stoughton Street, Stoughton, MA. No ISBN. US$7.00. Order directly from the publisher.

In her introduction, Rose says that this is a book of “vignettes on my life as a diabetic, and a selection of my poems for your reading pleasure.” Many, but not all, focus on her life with diabetes. I was moved by her recollections from her childhood, especially her feelings of being different from other kids as she was growing up. About half of The Insulin Kid deals with her diabetes in one way or another. The other half deals with her spirituality, specifically, of being a Christian. If religion isn’t your thing, it’s easy to skip over those parts and learn how diabetes helped shape the life of this one human being — Rose O’Donnell, the insulin kid.

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